Rare like me
Motherhood, faith, and life with Juvenile ALS
Stories of resilience and Jesus
Rare like me
Motherhood, faith, and life with Juvenile ALS
Stories of resilience and Jesus
Get to Know Rare Scarletts
Faith, Motherhood & a Rare Diagnosis
Hi, I’m Scarlett.
I’m a mother, a believer, and someone learning how to live fully in a body that doesn’t always cooperate with me. I live with Juvenile ALS, a rare condition that has changed the way I move through the world—but not the way I love, dream, or show up for my family.
My journey with ALS didn’t start recently. I’ve had symptoms since I was 4 years old—long before I had the words to explain what my body was going through.
Rare Scarletts was born out of my real life. Not the filtered version, not the “inspiration” version people expect from disability stories—but the everyday moments in between. The hard ones, the holy ones, the funny ones, and the ones that stretch me more than I ever thought I could be stretched.
I created this space to share what it looks like to be a disabled mom, to hold onto faith in the middle of uncertainty, and to find beauty in a life that doesn’t always go as planned. Here, you’ll find pieces of my story, encouragement for your own, and reminders that even in the hardest seasons, there is still purpose.
This isn’t about having it all together. It’s about showing up anyway—with honesty, with grace, and with God at the center.
I’m still learning, still growing, and Jesus is still working on me.
2 Corinthians 12:9🤍
My Family
The Heart Behind It All
My world is built around my family.
I’m married to my husband Reese, and together we’re raising three incredible kids—Olivia, Connor, and Ruby. They are the reason behind everything I do, the strength I lean on, and the joy that fills even the hardest days.
Motherhood for me doesn’t look traditional. Living with Juvenile ALS means I’ve had to learn how to show up in different ways—but if anything, it’s made me more present, more intentional, and more grateful for every moment we get together.
Our life isn’t perfect, but it’s full. Full of love, growth, laughter, and the kind of memories we hold onto tightly.
This space is where I share our real life—the highs, the hard, and everything in between.
Support Their Dreams 🌍
As a mom, giving my kids opportunities to experience the world means everything to me.
Through EF Educational Tours, Olivia and Connor have the chance to travel, learn, and grow in ways that go far beyond the classroom.
These trips are more than just travel—they’re moments that shape confidence, perspective, and who they’re becoming.
If you feel led to support them, we are so grateful. Even sharing means more than you know.
Olivia — Italy 2027 🇮🇹
A chance to walk through history, experience new culture, and step into her future with confidence.
Connor — Japan 2028🇯🇵
An opportunity to explore the world, learn new perspectives, and grow beyond what he knows today.
Every share, prayer, and bit of support truly matters 🤍
As a mom navigating a rare diagnosis, being able to say yes to moments like this for my kids means everything.